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2016 Step Up for Down Syndrome Walk

MG_20140928_101420It’s that time of year again! Our team is registered and ready to start raising awareness and money.  This year will be even more exciting for us, we’re going to bring along some floovee clothes and show people what they’re all about. If you’re interested in joining our team you can register as a walker, a virtual walker, or make a donation in any amount.

Here’s a link to our team fundraising page

http://www.stepupdenver.org/KayLynsLight

From there please take a look at the Rocky Mountain Down Syndrome website and see some of their great programs starting from parents first receiving a diagnosis to advocacy for adults. They were a help for us personally when first moving back to Colorado and needing to get ready for heart surgery. They are an awesome resource for parents locally.

More info, progress updates and pictures to come!

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Our journey begins

Welcome to my page and thank you for taking some time to read my first ever blog post. My hope is that you enjoy my chaotic and spontaneous life as much as I do. I am a mom of 2 boys 19 and 5 and a 3 year old daughter with Down syndrome. I’d like to share some of our journey, our ups and downs, our humorous moments, and my big idea of starting a business. My daughter was the inspiration behind the business, I couldn’t find clothes specific to kids on oxygen. I’ve been in the process of perfecting my product for a year now and I’m officially ready to launch.

But where do I start? There are a LOT of options for me to open an online store, but I feel like I spent too much time sourcing materials with really awesome prices, and would have to increase my cost to cover the 5 to 10% fees those sites charge. Plus having a child on oxygen sometimes means they have other health issues and those are a huge drain on finances. Website building 101 here I come.

I should probably stop talking about it and get to it. More posts to come on the progress of that. I’ll also be starting my annual fundraising for Rocky Mountain Down Syndrome, just as soon as I register our team for the Step Up walk. Most importantly more Floovee updates. I have 15 yards of fabric, 600 snaps and elastic ready to be made in to something pretty awesome!

 

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